In this episode I talk with Heather Joy Magdelano about her journey as a mother to two children with a rare genetic syndrome called Wolf-Hirschhorn. We get real about the complexity of emotions parents with kids with disabilities experience, along with caregiver’s burnout, how to avoid it + finding joy in deep acceptance. We cover G-Tube feeding to the fear of outliving your own child, along with flower essences + alternative therapies for kids with disabilities.
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Heather Joy Magdelano is a visionary, advocate, mother and healer. In 2016, she founded Journey into Joy, a unique self-care and relaxation program for mothers who have a child with a disability. Facilitating this transformational program has been an important catalyst for her own healing and inspired her to pursue and complete Yoga Teacher Training in 2018.
Additionally, she is the Family Engagement Coordinator for the Arizona Deafblind Project. In October 2018, Heather Joy hosted a retreat for mothers, many from Journey into Joy, allowing the group to go deeper into their personal healing and helping them create a vital bond with one another.
Heather Joy became a mother in 2007; her son and daughter were both born with the same rare genetic syndrome. Heather also has a young adult stepson; her grandson was born in 2014 with the same genetic syndrome as her children. Parenting two children with multiple disabilities thrust her into a life of personal growth and self-healing: it was a choice to become bitter or better, to descend into despair or rise up. She chose to rise up.
Her words to describe Lichen, which also perfectly describe how she brings her gifts into the world:
Adaptable, wise + knowing.